May 162019

Chair - Action for M.E.

Business / Organisation Name: Action for M.E.
Business / Organisation Sector: Not-for-profit
Business / Organisation Website:
Business / Organisation Type: Charity or Not-for-Profit
Role Title: Chair
Remuneration: Expenses only

Role Description

Action for M.E. takes action to end the ignorance, injustice and neglect faced by children and adults with M.E., every day. With our Chair standing down after a very productive three-year term, we are seeking an exceptional individual to lead our dedicated Board of Trustees.

Myalgic encephalomyelitis (M.E.) is a serious, neurological condition affecting at least 250,000 people in the UK – more than MS and Parkinson’s combined – and most face considerable challenges in accessing appropriate care and support. Action for M.E. is the only UK charity that supports people with M.E. of all ages. We offer an information and support service, including welfare benefits advice and complex family casework, and enable peer-support to reduce isolation; we also recently launched a regional advocacy service in the Midlands and South West. We engage with policy-makers at local, national and international level to address the changes so urgently needed, directly informed by the experiences of children and adults with M.E., and work collaboratively to invest in and campaign for accelerated biomedical research.

Our dedicated Board holds ultimate accountability for everything we do, and our constitution requires that at least half of our Trustees have direct personal experience of M.E. Our Trustees determine our mission and vision, engage in strategic planning, formulate policies, ensure adequate financial resources and oversee Action for M.E.’s charitable activities. Our Chair ensures that Trustees fulfil their responsibilities and accountabilities for good governance, and optimises the relationship between Trustees, our creative and committed staff team, and our enthusiastic volunteers. He or she will support and work in partnership with our brilliant Chief Executive, Sonya Chowdhury, helping her achieve our mission of empowering people with M.E. to fulfil their potential and secure the care and support they need, while working towards a greater understanding of the illness and ultimately a cure.

We are seeking a Chair with experience in a senior strategic leadership role who can provide effective leadership to the Board ensuring that it fulfils its responsibilities and accountabilities for good governance of the Charity. A successful candidate will be able to create additional value for the Charity through soliciting additional resources in the areas of policy and influence, awareness-raising, press and media, and/or income generation. An understanding of M.E. and its impact, and a commitment to Action for M.E.’s purpose, is essential, as is understanding and acceptance of the legal duties, responsibilities and liabilities of Trusteeship. Independent judgment, tact and diplomacy, and good communication and interpersonal skills are a must, alongside impartiality, fairness and the ability to respect confidences.

To ensure that the Board functions effectively, Trustees are expected to attend as many meetings as possible, with remote access offered to those who face challenges relating to illness and/or disability. Because of the critical role that they play, the Chair is required to attend most, if not all, Board meetings. This will include a minimum of four Board meetings per year in London and Keynsham, and an AGM in the autumn, plus one-to-one sessions with the Chief Executive and ad hoc support and engagement outside of meetings

Application Details

Please use the link below to the relevant page on our website for the application pack:

Closing Date: 10/06/2019
Contact Name: Anna Whitson
Contact Telephone: 01179 376 637
Contact Email:

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